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Parents & Families

Finding out that your child or loved one has hemophilia can be devastating. What does this mean for their future? What can we do to protect him? Know that children with hemophilia can live long and healthy lives. They can also enjoy the many wonderful parts of childhood, but with some added precautions and support.

Newborns & Infants

A new baby brings joy and excitement, but a hemophilia diagnosis changes everything. The first year will require special care, but rest assured that you and your family will have a strong support network to help ensure the baby’s health and happiness. Keep reading

Preschoolers

Hemophilia won’t hinder a child’s growth and development—or their natural curiosity. So resist the temptation to shelter your child. Encourage their impulses to explore the world, and work with daycare staff to create a safer environment for them to do so. Keep reading

Older Schoolchildren

As your child gets older, new challenges arise — from fitting treatment into busy schedules to coordinating activities with schools. Be sure school staff are well informed and prepared to support your child throughout these years. Keep reading

FAQs

Get answers to frequently asked questions about hemophilia and its management for parents and families. Keep reading

Toddlers

Even healthy toddlers are a handful. With hemophilia, you’ll need an extra level of effort to keep an active child safe. Be prepared for the challenges and just remember that minor injuries will happen and can be treated—so try to focus on the many joys of this fun stage. Keep reading

Younger Schoolchildren

It can be very hard to let go, and send your youngster to school on their own. You may feel anxious or scared. As you watch them start developing social skills and independence, work with school staff to ensure a positive and safe environment in which they can blossom. Keep reading

Teenagers

The teenage years can be a turbulent time—as teens look to break free of parents, find their own identity, and fit in with their peers. Hemophilia can feel like a burden, so help them stay responsible about their health even as they test new boundaries. Keep reading


Do you have any adults with hemophilia living at home?

If you live with an adult family member with hemophilia, there are many ways you can be there for them:
  • Encourage them to choose activities with a lower risk of injury
  • Offer to help them with tasks and chores that may cause strain, such as heavy house or yard work
  • If they have children, offer to babysit so they can rest or just take time to themselves
  • Remind them to keep important medical information handy—like phone numbers of their healthcare providers and treatment centre
  • Suggest that they wear a Medic Alert bracelet to notify others of their condition in case they are unable to
  • Be available to talk to them about their feelings and experiences—both positive and negative
  • Encourage them to get check-ups regularly, particularly as they age—it’s important for aging adults with hemophilia to keep their blood pressure, cholesterol, and weight under control
  • Suggest changes to their routine and/or their home or work environments to help them keep their independence as they get older

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