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Comprehensive Care

Hemophilia is much more than a bleeding disorder: it affects a person’s entire life. There will be ups and downs, and having a highly skilled care team for ongoing support is essential. The complex challenges of hemophilia are why comprehensive care teams were established.

A comprehensive care team is a group of health professionals who work in a Hemophilia Treatment Centre (HTC). Together, they collaborate to care for a patient and provide support for his or her family. Comprehensive care teams are also available to support carriers and their families. Each member of the team offers a different type of support: some help with medical issues, while others help with the emotional and social challenges that patients and their families often face. These issues evolve as a child gets older – from daycare to the teen years to adulthood – so the care provided by your team will also adapt to meet these changing needs.

Comprehensive care team members

The comprehensive care team usually includes the following professionals:

  • Hematologist, a doctor who specializes in blood disorders, and who manages and directs the patient’s medical care
  • Nurse coordinator, who is often most involved with hands-on treatment and education
  • Physiotherapist to help with joint and muscle problems that may develop
  • Social worker to help families deal with emotional, social and/or practical concerns

This team also works closely with:

  • Coagulation laboratory, a lab that does specialized blood clotting tests
  • Hematology laboratory (for all other blood tests)
  • Blood bank (for product storage)
  • X-ray department, for assessing joint condition
  • Dentist, especially one familiar with hemophilia

Depending on the patient’s needs, the team may also include:

  • Additional hematologists
  • Pediatrician (for younger patients)
  • Orthopedic surgeon
  • Gynecologist/obstetrician
  • Rheumatologist
  • Genetic counselor/geneticist
  • Psychologist
  • Hepatologist (liver specialist)
  • Ear/nose/throat specialist

Find a Hemophilia Treatment Centre

To find an HTC near you, search the Canadian Hemophilia Society’s online directory at www.hemophilia.ca / en / treatment-centres
Aging with hemophilia

Learning how to take care of yourself in the face of age-related issues is just as important to people with hemophilia as it is to the rest of the population.
Learn more about aging with hemophilia

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