The most common treatment for hemophilia is factor replacement therapy. This involves an infusion (injection into the blood) of the clotting factor a person is lacking to control bleeding. Many people receive factor replacement therapy prophylactically to prevent a bleeding episode. There are also other medications that may be used for some patients. Following a healthy lifestyle is also an important part of managing hemophilia. Keep reading
Acute (short-term) and chronic (long-term) pain is a very common issue in people with hemophilia. It is often felt in the joints (i.e., knees, ankles and elbows) because of damage from repeated bleeding episodes. Many treatment options are available to help with pain relief. Keep reading
There was a time when doctors wouldn’t think of recommending physical activity to people with hemophilia. Times have changed. With the right safety measures in place, exercise is a healthy – and necessary – part of managing hemophilia. It provides both physical (improved strength, balance and coordination) and psychological benefits (improved self-esteem). Keep reading
Joint disease, such as arthritis, is common in people with hemophilia. Even one serious bleed can cause permanent joint damage. But usually, it’s due to repeated bleeding in the joints over time. It is much easier to prevent joint damage than to repair it after it has happened. Keep reading
Hemophilia is a complex condition, with many physical and emotional issues. So, care is needed beyond the treatment of the bleed. A comprehensive care team, with people from a variety of healthcare disciplines, is the best way to meet the evolving needs of people living with hemophilia. Keep reading
This section can help answer questions like:How is hemophilia managed? What are the treatment options for hemophilia? What is factor replacement therapy? What other treatment options are available? Are there first aid practices I should know about? What are some issues faced as a person with hemophilia ages? Why are people with hemophilia at risk of joint damage? What is joint disease, and how can it be managed? How can pain be managed? What is a comprehensive care team, and how can it help? Can my child still be active? Why is it important to stay active?
Learning how to take care of yourself in the face of age-related issues is just as important to people with hemophilia as it is to the rest of the population.
Learn more about aging with hemophilia