Tips for Supporting Adults
Adults with hemophilia may not need as much help as children—but there are still several ways you can be there for them:
- Encourage them to choose activities with a lower risk of injury
- Offer to help them with tasks and chores that may cause strain, such as heavy house or yard work
- If they have children, offer to babysit so they can rest or just take time to themselves
- Remind them to keep important medical information handy—like phone numbers of their healthcare providers and treatment centre
- Suggest that they wear a Medic Alert bracelet to notify others of their condition in case they are unable to
- Be available to talk to them about their feelings and experiences—both positive and negative
Find out more about the issues that hemophilia patients face
The Support Community
If you know someone with hemophilia—whether you're a teacher, daycare worker, babysitter, friend, co-worker, or involved in another way—you may already know a bit about the disorder. But you may be interested in learning more, and finding out what you can do to an even more supporting member of their community.
If you are directly responsible for a child with hemophilia, it's very important you understand what's involved in their medical care and well-being. If you know older patients, it helps to be aware of the longer-term effects of the condition and the challenges and limitations they may face. Education and open communication will help you feel more confident about offering both practical assistance and emotional support.
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Daycare & Pre-school
Pre-school-age children are full of curiosity—and those with hemophilia need extra attention to ensure their safety as they explore the world around them. If you're a daycare worker, you'll need to learn how to establish a safe environment and what to do in case of an injury.
Learn more about daycare and pre-school issues -
Elementary & High School
During the school years, hemophilia requires a special level of coordination between families and school personnel. As a teacher, coach, or other staff member, you should understand what activities the child can participate in and how to handle treatment situations.
Learn more about elementary and high school issues
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