• Newborns & Infants
• Toddlers
• Pre-schoolers
• Younger Schoolchildren
• Schoolchildren
• Teenagers

1. R&D
2. PAAB

Parents & Family

If you have a child or other family member with hemophilia, you probably have many questions and concerns. Remember that children of all ages and types face challenges—those with hemophilia just have a few more to deal with. If you understand the issues that most affect your loved one throughout each stage of life, you'll be better equipped to provide support.

Remember that hemophilia can also be hard on other family members. Healthy siblings may feel resentful or neglected. Parents may feel guilty, or overwhelmed with responsibilities. Other relatives may be nervous about caring for the affected child. Reach out to each other as well as the broader hemophilia community, and don't be afraid to seek professional help from a social worker or family counselor.

• Newborns & Infants

  A new baby brings joy and excitement, but a hemophilia diagnosis can raise many worries. The first year will require special care, but rest assured that you and your family will have a strong support network to help ensure the baby's health and happiness.

  Learn more about caring for newborns and infants

• Toddlers

  Even healthy toddlers are a handful! And with hemophilia, you'll need an extra level of effort to keep an active child safe. Be prepared for the challenges and just remember that minor injuries will happen and can be treated-so try to focus on having fun.

  Learn more about caring for toddlers

• Pre-schoolers

  Hemophilia won't hinder a child's growth and development—or their natural curiosity. So resist the temptation to shelter your child. Encourage their impulses to explore the world, and work with daycare staff to create a safer environment for them to do so.

  Learn more about caring for preschoolers

• Younger Schoolchildren

  It can be hard to cut the ties and send a young child with hemophilia off to school on their own. But now is the time for them to develop new social skills and start building the independence that will serve them in later years.

  Learn more about caring for younger schoolchildren

• Schoolchildren

  The school years can pose many challenges for families living with hemophilia, from fitting treatment into busy schedules to coordinating with schools. Be sure school staff are well-educated and prepared to support your child.

  Learn more about caring for school children

• Teenagers

  Adolescence can be a turbulent time-teens are simultaneously seeking to break free of parents, find their own identity, and yet still fit in with their peers. Hemophilia can feel like a burden, so help them stay responsible about their health even as they test new boundaries.

  Learn more about supporting teenagers